Did you know that doctors are to "do no harm" to their patients? I feel like it is made up, a gimmick in movies and television shows for the plot. I know I've been harmed, and I am not alone.
I have told you, I have a garbage diagnosis "essential tremors with spasms." I got that diagnosis by the best neurologist I've ever had. It is, a garbage diagnosis though. It's a placeholder something real.
Last week, I met my movement disorder specialist. For the first time, I didn't feel like I was being a crazy person as I described my symptoms. He knew what I was talking about and it seemed reasonable to him. I've consistently seen neurologists for the last 15 years. The longest I've gone without a neurologist appointment was 7 months. For 15 years I've been a crazy girl talking nonsense until I show a video and then, I still feel like a freak probably doing it to herself
I've been taken off all medication twice. Because that is the only way to see if my medications are causing the problems that I am having, and there aren't notes about my experience in my medical chart, so a new doctor may feel that I need that to do it again. All of those helpful medications, garbage.
As you know, a significant number of my issues had been hormonal. There are about a million downsides to the hysterectomy, and honestly I work on not paying attention to those. New doctors would be shocked about my use of dangerous birth control, and then end up putting me on medications with the same dangers. My experience with the OB/GYN specialty (and subsequently neurology) often left me in tears, and the truth is that my experience is not that abnormal. There are not a lot of options for hormonal based treatments, and I often felt as if I wasn't in charge or being fully informed. When I started birth control, I had no idea the added risks from migraines with aura. I never had a conversation about it with an OB/GYN until I'd been on birth control for over 5 years. Sometimes, I'm still struck by the severe loss of my ability to give birth. Don't get me started on the essure.
All of this TRAUMA from the American medical complex was brought up by the book Everything Below The Waist by Jennifer Block.
Everything Below the Waist was an amazing read. It is filled to the brim with personal stories, facts and figures, and backed with research. I could spend another month reading all of the articles referenced in this book, and that is so necessary when we are talking about women's health, because people suddenly get emotional and feel it's a political comment instead of healthcare. This book should be required reading for any medical professional and especially for those in the American government that have impact on the care of women's health. Spoonies would also benefit from reading this book, it is affirming to read the research and know other women share your experiences. As I stated, it was an emotional read for me, and I believe it will be for other women. Jennifer Block carried through everything you need to learn about women's healthcare in America.
I have told you, I have a garbage diagnosis "essential tremors with spasms." I got that diagnosis by the best neurologist I've ever had. It is, a garbage diagnosis though. It's a placeholder something real.
Last week, I met my movement disorder specialist. For the first time, I didn't feel like I was being a crazy person as I described my symptoms. He knew what I was talking about and it seemed reasonable to him. I've consistently seen neurologists for the last 15 years. The longest I've gone without a neurologist appointment was 7 months. For 15 years I've been a crazy girl talking nonsense until I show a video and then, I still feel like a freak probably doing it to herself
I've been taken off all medication twice. Because that is the only way to see if my medications are causing the problems that I am having, and there aren't notes about my experience in my medical chart, so a new doctor may feel that I need that to do it again. All of those helpful medications, garbage.
As you know, a significant number of my issues had been hormonal. There are about a million downsides to the hysterectomy, and honestly I work on not paying attention to those. New doctors would be shocked about my use of dangerous birth control, and then end up putting me on medications with the same dangers. My experience with the OB/GYN specialty (and subsequently neurology) often left me in tears, and the truth is that my experience is not that abnormal. There are not a lot of options for hormonal based treatments, and I often felt as if I wasn't in charge or being fully informed. When I started birth control, I had no idea the added risks from migraines with aura. I never had a conversation about it with an OB/GYN until I'd been on birth control for over 5 years. Sometimes, I'm still struck by the severe loss of my ability to give birth. Don't get me started on the essure.
All of this TRAUMA from the American medical complex was brought up by the book Everything Below The Waist by Jennifer Block.
Everything Below the Waist was an amazing read. It is filled to the brim with personal stories, facts and figures, and backed with research. I could spend another month reading all of the articles referenced in this book, and that is so necessary when we are talking about women's health, because people suddenly get emotional and feel it's a political comment instead of healthcare. This book should be required reading for any medical professional and especially for those in the American government that have impact on the care of women's health. Spoonies would also benefit from reading this book, it is affirming to read the research and know other women share your experiences. As I stated, it was an emotional read for me, and I believe it will be for other women. Jennifer Block carried through everything you need to learn about women's healthcare in America.
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